The Parkinson’s Association San Diego (PASD)
Greater San Diego area. Mission: Optimize quality of life for people affected by Parkinson’s disease with programs and services that enhance Mind, Movement and Morale. Vision: Continue to be the leading Parkinson’s resource in San Diego county, setting a standard for education, support groups, information and referral, evidence based exercise programs, community events, social opportunities, compassion and encouragement. NCPSG works closely with PASD to facilitate shared goals. http://www.ParkinsonsAssociation.org
The American Parkinson Disease Association (APDA)
Through its nationwide system of Chapters and Information & Referral (I&R) Centers, APDA uniquely delivers education, support, and patient services to Americans with Parkinson’s and their families each day Toll free: 1-800-223-2732 http://www.apdaparkinson.org
Parkinson’s Foundation
Supports Parkinson-related research, patient care, education and outreach. Toll free: 1-800-473-4636. http://www.parkinson.org
Parkinson’s Resource Organization (PRO)
Greater Los Angeles area monthly support group meetings with speakers and caregiver sharing time. Toll free: 1-877-775-4111. http://www.parkinsonsresource.org
Parkinson Action Network (PAN)
The Parkinson's Action Network (PAN) is no longer in operation. Key PAN staff and programs have transitioned to The Michael J. Fox Foundation for Parkinson's Research (MJFF), and content from the PAN website now lives on http://www.michaeljfox.org/policy.
Through this unification, MJFF will lead a cohesive research and policy effort to accelerate Parkinson's research and increase quality of life for those living with the disease today.
Michael J. Fox Foundation (MJFF)
A foundation dedicated to finding a cure for Parkinson’s Disease, Resource for clinical trials information, educational webinars
Toll free: 1-800-708-7644
http://www.michaeljfox.org
https://foxtrialfinder.michaeljfox.org/?navid=ftf
Davis Phinney Foundation
Provides information, inspiration, tools, resources, and opportunities to people living with PD and care partners to better manage their disease and promote increased engagement in health.
Toll free: 1-866–358-0285 info@davisphinneyfoundation.org
http://www.davisphinneyfoundation.org/
Northwest Parkinson’s Foundation (NWPF)
Serving Montana, Alaska, Idaho, Oregon and Washington State, NWPF is leading the country in innovative uses of technology to reach people in rural and urban areas alike.
Toll free: 1-877-980-7500
http://www.nwpf.org
Caregiver Coalition of San Diego
This organization's purpose is identify and address the needs of Caregivers so as to make caring less stressful. They offer monthly meetings and other activities. 858-505-6300
http://www.caregivercoalitionsd.org
Family Caregiver Alliance
A secure online solution for quality information, support, and resources for family caregivers of adults with chronic physical or cognitive conditions such as Alzheimer’s, stroke, Parkinson’s, and other illnesses. Toll free: 1-800-445-8106
http://www.caregiver.org
American Academy of Neurology
American Academy of Neurology (AAN) patient website. Patient education brochures and videos
Toll free: 1-800-879-1960 Order a free subscription to their bi-monthly magazine ‘Brain&Life: Neurology for Everyday Living’ using the link https://www.brainandlife.org
Today’s Caregiver
America’s magazine for family & professional caregivers http://www.caregiver.com
PMDAlliance
An organization based in Tucson, AZ. Hosts support groups, conferences, workshops and retreats in Orange County and the LA area. Tel: 800-256-0966. www.pmdalliance.org
Parkinson Alliance
Raises and distributes money for the most promising research leading to a cure for Parkinson's disease. Partners with the Tuchman Foundation to ensure that every dollar donated by individuals and all net proceeds of events go directly to research. The Alliance is also devoted to improving quality of life within the DBS-STN community through an affiliated resource, www.DBS-STN.org. Tel: 800-579-8440
http://www.parkinsonalliance.org
Tremble Clefs
Tremble Clefs® San Diego is a fun and free, therapeutic singing program for people living with Parkinson’s and their caregiving partners and is generously supported by a community grant from the Parkinson’s Foundation. Under the guidance of a professional choral director, they sing popular songs along with active movement that provides singers with benefits that may relieve common symptoms of the disease.
• Improved vocal strength and flexibility
• Improved swallowing
• Socialization and community
• Free 2-hour weekly sessions with snacks
• No singing experience required
To download and print a high-quality flyer org to find a location near you, visit trembleclefs.com
Bereavement
A list of local faith-based bereavement support groups is available on this website.
https://www.palomarhealth.org/bereavement-support-services/bereavement-support-groups
A list of local support groups which are not necessarily faith-based is available on this website.